I saw this some time ago, its all in French from the institute of cardiology and peneumologie (something to do with lungs) and affiliated with Laval, at the end it references Resverlogix. 

In the video it has a patient talking about the challenges of having PAH, and this patient as well as the Doctors/Researchers talk about how eager patients are to participate in trials and studies....even if its only to help future generations.  

Again, this was in May of last year...so almost 12 full months ago now.  And there's also Fabry's, and Freidrich's Ataxia, FHSD a form a muscular dystrophy.  These are not all diseases that affect the elderly, sometimes its kids.

As frustrated as investors are at the slow progress....imagine how those suffering from these diseases feel, and their families.  

Here's the video for those who understand French, its subtitled in French which helps if your level of fluency is okay but not great: